In April 2012, Tim Wesley was diagnosed with an advanced stage of a very rare form of Appendix Cancer called Peritoneal Carcinomatosis (PMCA).
PMCA is the diffuse of cancer found in the abdominal cavity. PMCA can be caused by tumors of the appendix, colon, rectum, ovary, stomach, and small bowel, as well as from primary peritoneal tumors, sarcomas, and mesothelioma, a rare form of cancer that develops from the protective lining that covers many of the body’s internal organs, the mesothelium.
Since that time, Tim, his wife Denise and their daughters, Skyler, 11, and Mackenzie, 9, have learned about the criticality of being your own advocate.
Tim’s initial prognosis was very grim and he was told he was not a surgical candidate. With this type of cancer, he could only be treated by chemotherapy and would have about 12-14 months to live.
Tim and Denise found that prognosis to be unacceptable.
Through hundreds of hours of research, without a doctor’s direction, they found their way to having visits with three cancer surgeons, in Baltimore, Pittsburgh, and Buffalo, who specialize in this type of cancer. They found out during their research and visits, that Tim was in fact a surgical candidate and that this surgery could save his life. It would at minimum give him more time, than chemotherapy alone.
One of the world’s best surgeons for PMCA, Dr. Armando Sardi at Mercy Medical Center in Baltimore, MD, performed cytoreductive surgery and HIPEC (Hyperthermic Intraperitoneal Chemotherapy) on Tim, July 26, 2012. Dr. Sardi and his Medical Team at Mercy Medical Center are doing multiple research studies into the causes and treatment of Peritoneal Carcinomatosis.
Tim is celebrating his one year anniversary of NED (No Evidence of Disease)!
Tim and Denise have formed a Partnership, Be uninTIMidated, in hopes of raising funds to support Dr. Sardi’s Research and to help raise awareness for this type of rare cancer. In addition, they would like to help families that need support with advocating for themselves. The goal is to educate families on how to advocate and to help financially support them in their travels, as they seek opinions from experts in their specific form of cancer.
Since its inception in September 2012, Be uninTIMidated has raised over $35,000 for Appendix Cancer Research and has helped support four families in their fight against Appendix Cancer! We are “Paying it Forward”……
Be uninTIMidated will be hosting a Casino Night on Feb. 1 from 7-11 p.m. at 70 Barrett Dr., in Webster, NY. There will be casino games, wine tasting, beer tasting, music, raffles, appetizers, and a cash bar. Tickets cost $50/person and will include $500 in playing chips.
It is a scary road and no one wants to, nor should, travel it alone. All of the funds raised will be used to provide guidance for families with rare cancers in identifying their best possible treatment and to support Dr. Armando Sardi’s research.
Page 2 of 2 - For more information and to get your tickets and/or donate, go to www.beunintimidated.org. Checks will also be accepted and should be made payable to: Be uninTIMidated. Mail checks to 20 Thomlinson Circle, Penfield, NY 14526. Email firstname.lastname@example.org for more info.