1. A Greece family is on a mission to fight ataxia, a rare neurological disorder that affects areas of the brain that control motor and neurological functions. There is currently no cure. A person with ataxia may appear drunk, with slurred speech and loss of balance. It is often misdiagnosed as multiple sclerosis, a disease that attacks the central nervous system which has similar symptoms.
2. The Rochester Ataxia Foundation was started by the Cullen family, many of whom live in or are from Greece. Two of the seven siblings were diagnosed with the disease in their 1930s. The goal of the organization is to share resources with those with ataxia and their family and friends. According to the foundation, nearly 150,000 people in the United States are affected by inherited ataxia.
3. Ataxia is genetic disease with multiple types, each of which could be considered a disease in its own right. They share a loss of coordination. Symptoms and age of onset can vary depending on the type of inherited ataxia and can differ even among members of the same family.
4. A golf tournament and dinner to benefit ataxia research will be held on Sunday, July 14 at Webster Golf Club, 440 Salt Road, Webster. Registration and buffet lunch will start at 11 a.m. with a shotgun start to follow at 12:30 p.m. Cocktails will follow at 4:30 p.m., and dinner will be served at 6:30 p.m.
5. Golf and dinner costs $100. The fee for those who do not wish to golf is $50. For more information or to register, visit www.rochesterataxia.org.