Assemblyman Bob Oaks partnered with Assemblywoman Linda B. Rosenthal to pass a resolution to raise awareness for New Yorkers with epidermolysis bullosa, a genetic connective tissue condition.
Approximately 200 children are born with EB each year. Symptoms include extremely fragile skin, blistering and tearing of the skin, open wounds and damage to internal organs and bodily systems. Current treatments include pain management, daily wound dressing and protective bandaging.
Oaks and Rosenthal partnered to pass a resolution naming October 25 as New York State Epidermolysis Bullosa Awareness Day to coincide with the national week of awareness for the disease.